books

Friday, May 18, 2012

Benefiting SMA

Why do difficult things happen to good people?  The resilience and determination of people who are faced with challenging circumstances truly inspires me.  I hope their story (and an adorable little boy that will make you smile) will compel you to help them find a cure for an incurable genetic disease.  A grandchild of a family friend, Denise Cotogno, featured on WDSU Channel 6 news was diagnosed with Spinal Muscular Atrophy (SMA). SMA is a terminal genetic disease that affects a person's ability to perform normal functions (standing, eating, breathing, etc).  At only 19 months old, he and his wonderful and determined family are learning to adapt to everyday life with this degenerative disease.  Please view the article and video for Trevor Rickerson and watch him in action.  His spirit and playfulness are amazing to see and will inspire to join the family's effort to stop the progression of this disease and find a cure for this it.  Trevor's family has set up a foundation in his name, Trevor's Cure Dat Foundation, where you can learn more about the disease, read the family's story, view the blog, and make a donation to help meet Trevor's medical needs, support SMA research, and FIND A CURE. 

An SMA Fundraiser will be held this Sunday, May 20th at Rock n' Bowl in New Orleans from 1:00-4:00 pm.  For additional information about the fundraiser for SMA and Jackson Audibert, who also suffers, view the flyerThe Wiseguys Band (my dad's the trumpet player, incidentally) will be entertaining the crowd, and there will be silent auction...and of course BOWLING!  Please come out and support this wonderful cause to help find a cure for this disease that is affecting Trevor, Jackson, and many other children.  As the leading genetic killer in children under 2, we must unite in the effort to fund medical research and find a cure for this disease.  I look forward to seeing you to support these amazing children and their families!  You can purchase tickets and make donations at the Families of SMA site.

The Rickerson Family


View the WDSU Channel 6 article and video by visiting Trevor Rickerson.
Learn more by visiting Trevor's Cure Dat Foundation.

Tiny's Oyster Pearl of Wisdom (OPW) is to be grateful for the things in your life by making a difference in the lives of others in need.  Samuel Johnson (1709-1784) said it better than I could.  "The true measure of a man is how he treats someone who can do him absolutely no good."  So, do something for someone who could never repay you with anything...but maybe a smile. :)

Thoughts and prayers for children with SMA,
The Tiny Librarian

No comments:

Post a Comment